We are honored to dedicate our Laughing Matters event to supporting Gavin by helping to fund a handicapped-accessible van, granting him the mobility and quality of life he deserves.
Gavin is an amazing 8-year-old boy living with MECP2 Duplication Syndrome, a rare genetic disorder that primarily affects boys. This condition leads to severe neurological impairment and developmental delays and is considered terminal, with a life expectancy of just 25 years.
Every day, Gavin faces immense challenges. He struggles with low muscle tone, chronic digestive issues, acid reflux, and difficulty regulating his body temperature. As the syndrome progresses, it brings increasing rigidity, regression, a heightened risk of uncontrolled seizures, and life-threatening respiratory infections.
Despite these obstacles, Gavin’s joyful spirit and unwavering strength inspire everyone around him. He is surrounded by a devoted family who cherishes every moment with him, determined to give him the best possible life. With your help, we can ease some of the burdens Gavin and his family face by providing a safe, reliable way for him to travel. Your generosity will help ensure that Gavin has access to medical care, family outings, and the experiences that make life meaningful.
Together, we can give Gavin the gift of mobility and show his family that they are not alone on this journey. Join us in making a difference because every mile traveled in his new van will be a testament to the power of hope, love, and community.
